I had the pleasure recently of being contacted by Lindey McIntyre from the Bethanys Hope Foundation charity here in London, Ontario. She was interested in including Nightmare Nibbler plush toys in gift bags that she was preparing for some very special children who have MLD.
MLD is the abbreviation for Metachromatic Leukodystrophy - a terminal illness that Lindey and her husband, Dave’s, daughter Bethany was diagnosed with in 1995. When they were told by their medical team that there was nothing that could be done for Bethany, they realized that her only hope was research! Determined to make a difference and to help the lack of funding that was out there for MLD, the McIntyres established Bethanys Hope Foundation which helps to fund research into this debilitating disease via Bethanys Hope Leukodystrophy Research Laboratory.
Sadly, Bethany’s struggle with MLD ended in 2000 but ‘her legacy of hope endures and continues to inspire a community of men and women to find the answers to eliminate this wretched disease known as Leukodystrophy…’
Over the years, everyone associated with Bethanys Hope Foundation, has combined their talent and energy to execute a number of charity events including the “ Rock the Park” music Festivals which have them on their way to reaching another fundraising milestone for research dollars to go towards their ultimate goal of a cure!
My heart was full as I looked at the photo that was recently posted of two of the beautiful children with MLD holding their Nibblers.
I’m sure that Norbert couldn’t ask for better caregivers! Seeing them reinforces my goal of one day being able to offer Nibblers en masse to many brave kids everywhere through The Nightmare Nibbler Project!
For more information about Bethanys Hope Foundation, MLD and/or if you’d like to know how you can help, please visit the Bethanys Hope Foundation website at http://www.bethanyshope.org/.
Some see a hopeless end, while others see an endless hope.’